European Alliance Calls for Newborn Screening

European Alliance Calls for Newborn Screening

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European Alliance Calls for Newborn Screening

The European Alliance for Newborn Screening for Spinal Muscular Atrophy is calling on all European states to introduce routine screening of all newborns for spinal muscular atrophy (SMA) by 2025. The recently-formed Alliance, which is composed of European patient organizations, academics, and the pharmaceutical industry, published its first white paper in support of this plan. The paper, “Spinal muscular atrophy: screen at birth, save lives,” is available online. In recent years, new therapies for SMA have…

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