Activities Set to Mark Porphyria Awareness Week April 10–17

Activities Set to Mark Porphyria Awareness Week April 10–17

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Activities Set to Mark Porphyria Awareness Week April 10–17

Activities are afoot to mark Porphyria Awareness Week — taking place April 10–17 this year — set aside annually to call attention to this group of inherited disorders that affect an estimated 1 in 500 to 1 in 50,000 individuals globally. Supporters are encouraged to engage in Zoom sessions and educational events, participate in advocacy efforts, and flood social media — all to raise awareness of porphyria among the public and to draw the attention…

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