Cost of Rare Diseases in US? Nearly $1 Trillion in 2019, EveryLife Foundation Finds

Cost of Rare Diseases in US? Nearly $1 Trillion in 2019, EveryLife Foundation Finds

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Cost of Rare Diseases in US? Nearly $1 Trillion in 2019, EveryLife Foundation Finds

As anyone affected by a rare disease knows, treating the illness while trying to go about everyday life is an expensive undertaking.  But exactly how expensive — in terms of direct and indirect costs across rare disease populations — might still come as a surprise: almost $1 trillion in 2019 alone, according to an in-depth study released by the EveryLife Foundation for Rare Diseases. The study, covering 379 rare diseases affecting 15.5 million people in…

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