Create an Environment Where You Can Live Well With Rare Disease

Create an Environment Where You Can Live Well With Rare Disease

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Create an Environment Where You Can Live Well With Rare Disease

Leading an association that supports and advocates for rare disease patients while being a caregiver to one certainly has shaped my outlook on life. To a larger extent, these roles have allowed me to find my calling within the campaign space, where I’m pushing for positive changes to the present system in New Zealand. These changes would help to provide better treatment opportunities for those with rare diseases. My husband, Aubrey, 57, was diagnosed with…

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