Shoshin for AADC Caregivers

Shoshin for AADC Caregivers

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Shoshin for AADC Caregivers

Providing constant care and supervision to a child with a chronic disease such as aromatic l-amino acid decarboxylase (AADC) deficiency can be mentally, physically, and emotionally draining. A Japanese concept called shoshin might help you change your perspective and see your role in a new light. What is AADC deficiency? AADC deficiency is a rare genetic disease, whose symptoms can include cardiac problems, oculogyric crises or eye spasms, seizures, pain, and problems with breathing and blood pressure. Patients…

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