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The ‘Right Time’ Can Be a Moving Target With a Progressive Disease

I was diagnosed with Friedreich’s ataxia (FA) in 2007 after searching for answers to the consistent and heavy fatigue I was experiencing. In case you aren’t familiar with FA, fatigue is commonplace, but there are more urgent issues, such as cardiomyopathy and mobility limitations, that tend to monopolize our attention. Because fatigue was the symptom that nudged me down the diagnostic journey, I’m not one to discredit its impact on my day-to-day. If you’d like…