‘Profound’ Loss Voiced by People With FAP, hATTR Amyloidosis in Interview Study

‘Profound’ Loss Voiced by People With FAP, hATTR Amyloidosis in Interview Study

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‘Profound’ Loss Voiced by People With FAP, hATTR Amyloidosis in Interview Study

People living with hereditary transthyretin (hATTR) amyloidosis — which includes familial amyloid polyneuropathy (FAP) — report “profound” life changes due to their disease, particularly as it progresses and affects them physically, emotionally, and socially, a study based on patient interviews reported. These findings emphasize the need for better care of those with hATTR amyloidosis, its researchers said. The study, “Patient-reported burden of hereditary transthyretin amyloidosis on functioning and well-being,” was published in the Journal of Patient-Reported…

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