The Battle Between Taking Care of Myself and Letting FA Ruin My Life

The Battle Between Taking Care of Myself and Letting FA Ruin My Life

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The Battle Between Taking Care of Myself and Letting FA Ruin My Life

The most unexpectedly disruptive symptom of my Friedreich’s ataxia (FA) has been fatigue. When I was diagnosed with FA in 2013, my initial research focused on the big symptoms, such as loss of balance and coordination, heart failure, loss of speech, and severe scoliosis. I read the word “fatigue” over and over, but I didn’t pause to give it much thought. In my mind, how did “being tired” compare to being dependent on a mobility…

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