Rare Disease Day Brings Me Hope as a PF Patient

Rare Disease Day Brings Me Hope as a PF Patient

287993

Rare Disease Day Brings Me Hope as a PF Patient

We talk a lot about the importance of finding and maintaining hope in the rare disease community. While I agree this is important, I also want to acknowledge it isn’t always easy while living with idiopathic pulmonary fibrosis (IPF), a rare and life-threatening lung disease that eventually steals your ability to breathe. Throughout my nearly five years of living with IPF, dealing with supplemental oxygen, shortness of breath, and intense fatigue and managing medications to…

You must be logged in to read/download the full post.