Neuro Key ‘Open Door’ Booklet Gives Voice to FA Patient, Caregiver Stories

Neuro Key ‘Open Door’ Booklet Gives Voice to FA Patient, Caregiver Stories

287825

Neuro Key ‘Open Door’ Booklet Gives Voice to FA Patient, Caregiver Stories

Real-life stories from people affected by Friedreich’s ataxia (FA) — featured in a new educational resource —capture the challenges of living with a complex and largely misunderstood disorder, and help to pinpoint areas of improvement needed in disease diagnosis and management. Called “Open Door,” this series of booklets was developed by Neuro Key, the working name of the U.K.-based nonprofit organization Tees Valley, Durham, and North Yorkshire Neurological Alliance. Intended as a learning tool, the most…

You must be logged in to read/download the full post.