Rare Disease Day Reminds Me of the Importance of Community

Rare Disease Day Reminds Me of the Importance of Community

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Rare Disease Day Reminds Me of the Importance of Community

For much of my life, I couldn’t imagine a better world for those of us with disabilities, rare diseases, and chronic conditions. I just wasn’t thinking about the disability rights movement. I didn’t feel like I fit into what I had perceived as “disabled,” and I didn’t really want to.  When I look back on my younger self, I can tell that I believed some problematic things. And I bought into some false narratives and…

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