You have no items in your cart.
We May Be Rare, but We Are Not Alone on Rare Disease Day

As we approach Rare Disease Day on Feb. 28, I reflect on the pros and cons of the word “rare.” Apart from my chronic illness, I love being unique. There’s something wonderful about having an uncommon skill or piece of knowledge. It’s partly the whimsy of having something that’s a novelty. But even greater is my love of sharing something new and different that might change a person’s perspective — something they might adopt as…