Study Finds Varying Perspectives From Parents on Spinraza Therapy for Children

Study Finds Varying Perspectives From Parents on Spinraza Therapy for Children

287114

Study Finds Varying Perspectives From Parents on Spinraza Therapy for Children

Parents of children with spinal muscular atrophy (SMA) reported different perspectives and concerns about Spinraza (nusinersen) therapy in an interview-based study, done to further understand the decision-making process involved in choosing whether to try the new treatment. The findings showed that, while many parents were focused on battling the disease and improving their child’s quality of life, some were more concerned that the new treatment might not work effectively for their child and could potentially…

You must be logged in to read/download the full post.