How We Began Educating Our Community About EB

How We Began Educating Our Community About EB

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How We Began Educating Our Community About EB

There are days when Jonah, my 11-year-old son with epidermolysis bullosa, and I feel like educating folks about his condition. And there are days when we don’t. When he was younger, I would intercept the stares, block him with my body, and do the educating myself. These days, he’s too smart for my block attempts, and feels the stares just as much as I do. Sometimes they are accompanied by a kind smile. Often they…

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