Eurordis Survey: Healthcare Experience Worse for Rare Disease Patients

Eurordis Survey: Healthcare Experience Worse for Rare Disease Patients

286894

Eurordis Survey: Healthcare Experience Worse for Rare Disease Patients

People with rare disorders have a worse healthcare experience than those affected by chronic diseases, according to the results of an international survey conducted by Eurordis-Rare Diseases Europe. Indeed, rare disease patients overall give their healthcare experience a medium-low rating, of 2.5 on a scale of 1 to 5, the survey results show. The survey identified three “priority” healthcare areas for improvement: follow-up consultations, guidance on resources and support, and psychological assistance. “The results of…

You must be logged in to read/download the full post.