A Rare Disease Traveler Finds Her Village

A Rare Disease Traveler Finds Her Village

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A Rare Disease Traveler Finds Her Village

I was once a rare traveler wandering the countryside. On my shoulders, I carried a basket of artifacts and relics. Each piece correlated to moments in my life when I’ve felt something within my heart — things both small or grand, benevolent or wicked — falling deep and deliberate like stones into a well. Elaborate cuckoo clocks echoed my fear of time and progression of my SMA. Modest treasure chests cradled gratitude for the petite,…

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