My Sister Is Gone, but She’s Still Teaching Me to Live in the Moment

My Sister Is Gone, but She’s Still Teaching Me to Live in the Moment

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My Sister Is Gone, but She’s Still Teaching Me to Live in the Moment

Batten disease took my sister from me, but it didn’t take her love for life. Now, more than two years after her untimely death at age 20, I think a lot about the lessons Taylor could teach those of us struggling with anxiety and uncertainty as the coronavirus pandemic endures. My family tried living in the moment for a long time after Taylor’s diagnosis of CLN1 disease (Batten disease) on a sticky summer day in…

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