New AHEAD Coalition to Address Pediatric Concerns in EDS, HSD

New AHEAD Coalition to Address Pediatric Concerns in EDS, HSD

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New AHEAD Coalition to Address Pediatric Concerns in EDS, HSD

The Ehlers-Danlos Society is pulling together a coalition aimed at addressing a broad range of pediatric concerns in Ehlers-Danlos syndrome (EDS) and hypermobility spectrum disorders (HSD). Among its focus areas will be misdiagnoses, evidence gaps in medical complications, and child abuse. The nascent AHEAD coalition — Action for Infants, Children & Young People with HSD & EDS Accurate Diagnosis — will comprise physicians, HSD and EDS community members, advocacy groups, and other stakeholders, including groups representing…

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