Cure Sanfilippo Foundation Heralds New Awareness Day in Ohio

Cure Sanfilippo Foundation Heralds New Awareness Day in Ohio

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Cure Sanfilippo Foundation Heralds New Awareness Day in Ohio

For nearly two years, an Ohio couple shared the heartbreaking story of their young son’s diagnosis with Sanfilippo syndrome, seeking to raise awareness about the rare genetic disease they had never heard of until it affected their own child. Then some friends got involved, one thing led to another, and now, Ohio’s governor has signed into law a bill (HB 32) making Nov. 16 Sanfilippo Awareness Day in the boy’s home state. “It’s amazing to…

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