Fighting for Insurance to Cover My Son’s Lifesaving Bandages

Fighting for Insurance to Cover My Son’s Lifesaving Bandages

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Fighting for Insurance to Cover My Son’s Lifesaving Bandages

Jonah, my 11-year-old son who has epidermolysis bullosa (EB), is wounded from head to toe and must be covered in lifesaving bandages every single day. These bandages not only cover his current wounds, prevent infection, and promote healing, but also give him a layer of “skin” that keeps him from developing innumerable, all-encompassing wounds. We partially change his bandages every day, and fully change them every other day.  Jonah as a baby, in dirty bandages…

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