I Have Fabry Disease. How Long Will I Live?

I Have Fabry Disease. How Long Will I Live?

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I Have Fabry Disease. How Long Will I Live?

Fabry disease is a progressive, potentially life-threatening, rare, genetic disorder. Many people with Fabry disease succumb to heart disease, kidney disease, and stroke at relatively young ages. A common question asked by people diagnosed with Fabry disease is, “How long will I live?” When I first learned that I have Fabry disease at 25 years old, the published average age of death for an untreated man was 41. I couldn’t find the original publication I…

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