aHUS Alliance Asking Patients Worldwide to Join Rare Disease Day Project

aHUS Alliance Asking Patients Worldwide to Join Rare Disease Day Project

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aHUS Alliance Asking Patients Worldwide to Join Rare Disease Day Project

For Rare Disease Day on Feb. 28, aHUS Alliance Global Action is inviting people worldwide to take part in a video/slideshow project aimed at raising awareness of atypical hemolytic uremic syndrome (aHUS) and the needs of its community. To participate, patients and caregivers are asked to send a patient’s photo, along with pertinent information that includes length of time to diagnosis, aHUS treatment, and what “feeling better” means to the patient. Customized slides will be…

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