NORD’s 6th ‘State Report Card’ Notes Progress, Raises Concerns

NORD’s 6th ‘State Report Card’ Notes Progress, Raises Concerns

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NORD’s 6th ‘State Report Card’ Notes Progress, Raises Concerns

While progress was made last year on newborn screening and other policy issues critical to rare disease patients, a “State Report Card” argues that many concerns — notably out-of-pocket costs for prescription medicines and access to affordable comprehensive care — still need attention. Those were the findings of the sixth edition of the State Report Card, produced by the National Organization for Rare Disorders (NORD) and its Rare Action Network. The report card project, launched…

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