New App Plays ‘Pivotal’ Role in Increasing Registry Successes

New App Plays ‘Pivotal’ Role in Increasing Registry Successes

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New App Plays ‘Pivotal’ Role in Increasing Registry Successes

In the first year since Parent Project Muscular Dystrophy (PPMD) and Thread launched a mobile app aimed at making participation easier, engagement in the Duchenne Registry — a newly revamped, 12-year-old network of patient-powered data — increased more rapidly than ever before, the non-profit reported. From November 2019 to November 2020, 424 people from 56 countries joined the registry, and the number of surveys completed on its website — more than 7,000 — was almost…

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