Rare Disease Groups, Pharmas Join SMA Europe Push for Newborn Screening

Rare Disease Groups, Pharmas Join SMA Europe Push for Newborn Screening

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Rare Disease Groups, Pharmas Join SMA Europe Push for Newborn Screening

Patient advocacy groups, a university, and pharmaceutical companies are among the 12 new partners of the European Alliance for Newborn Screening in Spinal Muscular Atrophy, also known as the SMA NBS Alliance. SMA Europe founded the alliance last year in an effort to include SMA in all newborn screening (NBS) tests in Europe by 2025. It announced these latest additions to its membership on a webpage. Prompt diagnosis and treatment of SMA is vital to preventing…

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