ERN-LUNG Project Helping People With Rare Lung Diseases

ERN-LUNG Project Helping People With Rare Lung Diseases

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ERN-LUNG Project Helping People With Rare Lung Diseases

“Patient journeys” is an initiative designed to help patients and clinicians  improve care for rare lung diseases, including pulmonary hypertension (PH). The project, announced in a press release from the European Reference Network on Rare Respiratory Diseases (ERN-LUNG), presents testimonies showing the clinical history and needs of patients through the various phases of diagnosis, treatment and care. When patients are involved in discussions about their healthcare, the relevance and quality of care services are improved and healthcare…

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