Acute Hepatic Porphyria Patients Asked to Take Part in Study Survey

Acute Hepatic Porphyria Patients Asked to Take Part in Study Survey

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Acute Hepatic Porphyria Patients Asked to Take Part in Study Survey

The American Porphyria Foundation is joining with others in asking people with acute hepatic porphyria to participate in the Porphyria Worldwide Patient Experience Research (POWER) study. Participation is in the form of a survey, estimated to take about 30 minutes to complete, according to announcement on the foundation’s website. This survey aims to better understand the emotional, mental, and physical burden that acute hepatic porphyria places on people with the disorder, as well as on family and…

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