When I say, “I don’t need my SMA to be fixed,” I mean it from the bottom of my heart.  Last month, I set sail with my first dose of the new disease-modifying therapy Evrysdi (risdiplam). It was a choice that required careful consideration of my options and the possible outcomes.  Over several weeks, I idled a wave of contemplation. I paid attention to the seagulls flying above me. I felt the motion of the…

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