New Online Resource Aims to Educate and Assist IPF Patients and Caregivers

New Online Resource Aims to Educate and Assist IPF Patients and Caregivers
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ProPatient has partnered with the Academy for Continued Healthcare Learning (ACHL) and the Pulmonary Fibrosis Foundation (PFF) to develop a new online resource for people affected by idiopathic pulmonary fibrosis (IPF).

The interactive program, “Idiopathic Pulmonary Fibrosis: Partnering with Your Doctor,” is meant to extend important information, tools and advice to people with all levels of disease understanding – from those new to IPF to those now under treatment. The program also includes tips on traveling or exercising with IPF and on ways to best communicate with doctors.

“We aim to serve as the trusted resource for all who are affected by this disease,” Kate Gates, the PFF’s director of programs, said in a press release. “Our partnership with ProPatient supports an ongoing dialogue with physicians, researchers, industry representatives, and the patient community.”

The patient education program, and its associated activities for healthcare providers, are available online at no charge.

The program explores what patients and caregivers need to know about IPF, including how it is diagnosed, its possible causes, and how it is treated. It also shares some helpful tips for patients caring for their own needs, or that might assist caretakers.

“Our platform uses a combination of simulations and smart checklists to educate patients and caregivers, and also to help them get more from their doctor visits,” said JoAnne Schaberick, co-founder of ProPatient.

IPF is a lung disease that usually affects middle-age and older adults. The condition causes tissues deep in the lungs to become thick and stiff, or scarred, over time, in a process called fibrosis. As the lung tissue thickens, the lungs can’t properly move oxygen into the bloodstream, depriving the brain and other organs of sufficient oxygen.

PFF is a nonprofit organization that works with physicians, organizations, patients, and caregivers worldwide to find a cure for pulmonary fibrosis. ACHL is a provider of continuing medical education (CME) programs, and ProPatient is a patient-focused, online educational platform.

The post New Online Resource Aims to Educate and Assist IPF Patients and Caregivers appeared first on Lung Disease News.

Carolina holds a BSc in Anthropology and a MSc in Urban Studies., and brings her interdisciplinary skills to her writing on a range of different topics in science, research and advocacy news.